Jutta Treviranus 2017-12-17 23:04:43
The bad news, the good news and what to do about it If we take any population of people and plot their needs and characteristics on a three-dimensional scatterplot, the plot will resemble a starburst. In that starburst, most dots will cluster in a denser centre while others spread out from the central core. There will be an invisible line some distance from the centre where people can be identified as having a disability. Mainstream products, services, schools, places of employment, homes, communities and technologies are all, by default, designed for the denser cluster in the centre of the starburst. Find yourself out at the periphery and it is likely that most things will not be made with your needs in mind. If something is made specifically for you—such as a computer keyboard that you can control, clothing you can put on, a kitchen or bathroom in which you can reach things, or learning material in a language you can understand—then it will not be as readily available, or as easy to set up or maintain. If what you are using needs to interoperate or work with products designed for the central core, such as software, it will not do this very well or consistently. Most significantly, and despite the fact that your expectations regarding interoperability, availability and reliability will need to be lower, products that work for you (e.g., a Braille-equipped computer, a car that can fit your wheelchair or a bathtub you can get into) will probably cost up to 10 times more than mainstream products. This is largely because the manufacturer cannot take advantage of the lowering cost of mass production. Unfortunately, the high price tag for specialist products and services is one factor that leads to people with disabilities living below the poverty line. Similar but different One of the things to note about the dots on the starburst is that those in the central cluster are close together, with those on the periphery becoming further apart. This illustrates the fact that people with disabilities are more different from each other than those served by mainstream designs. Despite this, people at the periphery are often lumped together as one group and expected to be served by a single “accessible version.” As you can imagine, this onesize- fits-all approach to accessibility is problematic. It means that everyone with a disability has to live with a compromised fit, with fewer degrees of freedom to adapt to a design that does not work. Another flawed approach is to cluster people into categories based on their medical diagnosis, even though there are many other factors that can influence an individual’s needs (e.g., the presence of a parent or spouse, place of residence). In addition, “medical diagnosis” does not always provide useful information about what I require—for example, if the category I am relegated to is “blind,” you will not know if I am Braille literate, have some residual vision, am an English language learner or can hear speech at standard volumes. Furthermore, any clusters we create will always leave people falling through the cracks and make it challenging for companies and service providers to comply. I might belong to two categories; have a need not incorporated by either of the categories; or need to compete with others for special priority. Creating boundaries and needing to produce special products and services for a variety of arbitrary needs also reduces the motivation to make specialized products and services. Digital networked systems The emergence of digital networked systems over the last few decades has brought good and bad news in the sector. Among the good news is that economies of scale are becoming less important as it becomes easier to personalize or to quickly produce variants of digital or digitally manufactured products (e.g., by changing a webpage style or through three-dimensional printing). It is also easier to find what you need and someone who can supply it. The bad news is that it becomes almost impossible to address an accessibility barrier by retrofitting, as has been done with architectural barriers. Digital barriers diffuse and morph like viruses, making them impossible to stamp out once they have propagated. Digital systems will flow around and beyond any static rules we come up with. This means we have to make sure, from the very start, that our digital, networked systems do not contain barriers. One way to do this is to create all products and services with the capacity to personalize or stretch the design out to the periphery. One size fits one Humans and human societies are not comfortable with change. All of our systems of valuation, evidence and prioritization are based on the large numbers and average dominant patterns. This is especially true of our institutions, such as schools and governments, because they are built for stability. Markets are faster to respond, but markets have yet to recognize the business advantage of stretching to include people with disabilities. However, there is an emerging realization that people are diverse; that there are alternatives to mass manufacturing and marketing that recognize this human variability; and that we all benefit from a better personal fit. To create markets and services that recognize variations and do not leave people stranded at the periphery of the scatterplot, we need systems that can provide one-size-fits-one designs.One such approach is called AccessForAll, which is supported by an international standard (ISO/IEC 24751). AccessForAll was first implemented in Canada in two projects (Web4All, and TILE), but is now the basis of several other international projects, including FLOE, Cloud4All, Prosperity4All and APCP. As networks become more sophisticated and inclusive (whether based on local networks, the web, cloud services or cooperative platforms—similar to Airbnb or UBER, but with bottom-up governance and revenue models) and we recognize that we do not need to treat people as either a mass or those who do not fit, it becomes possible to create a society that does not leave people stranded at the edge of the starburst that is our human family. Further reading • AccessForAll: raisingthefloor.org/who-we-are/our-approach • ISO/IEC 24751: iso.org/standard/41521.html • Web4All: web4all.ca • FLOE: floeproject.org • Prosperity4All: prosperity4all.eu • Cooperative platforms: platform.coop • GPII: gpii.net Jutta Treviranus is the director of the Inclusive Design Research Centre in Toronto, Canada. She heads the Inclusive Design Institute, directs an innovative graduate program in Inclusive Design and is a professor at the OCAD University in Toronto. Jutta is also co-founder of Raising the Floor (RtF-I), a not-for-profit association based in Geneva, Switzerland, that is dedicated to making the web and mobile technologies accessible to those with disabilities and literacy and aging-related challenges, regardless of their economic status. RtF-I is responsible for leading the development of the GPII and advancing the concept of one-sizefits- one digital inclusion. The GPII: One-size-fits-one digital inclusion The Global Public Inclusive Infrastructure (GPII) is a cloud-based solution that allows for the creation, discovery and use of one-size-fits-one access to technologies. The GPII is a unique set of tools created to ensure that everyone who faces accessibility barriers can access and use any digital technologies, no matter their resources or conditions. The main focus is on filling the gaps in accessibility for the full diversity of individuals facing barriers to accessing digital technologies. Consumers, developers, researchers, public institutions and organizations—as well as mainstream companies wanting to include accessible features in their existing products and solutions—can all benefit from the GPII. The GPII was built by top researchers, assistive technology experts and companies from Europe, Canada and the USA under Prosperity4All, an EU-funded project that began in February 2014. A total of 24 partners from 13 countries have taken part in this project.
Published by BCS Communications, Ltd. View All Articles.